Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so glad your mother is feeling a little better. Im unsure what a Foley catheter has to do with a new PEG tube. Your mother should have been given a J/G tube. If formula was given to her when the peg tube was dislodged then the J/G tube would be used to get the formula out of where it doesnt belong. Your mother should have what looks kinda like a colostomty bag attached to the "G" side of the J/G tube. That is the marked 'gastric' on the J/G tube. This bag will suck all the bad fluid out from where it doesnt belong. They cant just leave it there, it needs to be removed.
You may not think I know what Im talking about since I am not a medical professional. This topic is one I am very familiar with, it happened to me and I was in agony. I knew something was wrong, I was getting so annoyed that the nurses wouldnt listen to me. I finally said "I am NOT like other patients you have, I actually do know quite alot about my medical condition and this is NOT normal so I want tests done NOW!" I told them I wanted an MRI and a CT scan which they actually did and found I was right. They could see the PEG tube had become embedded in my abdominal wall and when they tried to put formula in it would go where it wasnt supposed to go.
Having a J/G tube, it wears out rather quickly and I end up getting it replaced about every other month. This is done on an outpatient basis in the radiology dept. I am awake while the doc does this minor surgery. He will use dye to see where the tube is and make sure its placed correctly. I cant count the number of times I have had this done, its not a big deal to me anymore.
Its not easy being a caregiver and have your mother in the hospital. Sometimes the staff is not as prompt and on the ball as they should be. All too often Ive seen too many caregivers end up staying almost round the clock with the patient so they can advocate for them. Im concerned about your mothers intake. Now that she finally has a feeding tube have they set her up with a feeding pump? This should be running 24 hours a day while she is in there. She needs to be built up before beginning chemo/rads. What troubles me about her situation is the delay to get the feeding tube situation taken care of. That should have been fixed immediately and she should have the J/G type so any 'lost' fluids can be removed from her abdomen. It should not have taken days for them to finally get her set up with enough fluids so she isnt dehydrated. A cancer center would have much more experience handling situations like what your mother has been thru. It just seems like this place bungles things a little too much for the patients well being.
Best wishes with everything! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |