Thank you all for your input...each day is a new challenge of some sort. Dr pulled out her tube..says Fri will put in a new one. Says it's infected! NOOOO clue how as we have followed instructions to a T...clean hands, clean equipment...Just don't understand. The palate has "closed" full of the
HPV I presume. So she is putting in as much water as she can stand..& 6 Ensure's a day. Also on an antibiotic. We have changed Drs in her cancer care & yes...they are on the same page...we had problems with the oncologist....since mom didn't do the radiation he seemed to be busy w/others...so, we found new Drs & closer to home...and at another cancer center. I thank GOD that you folks are here...that there is somewhere to turn to get good info. We are in a small town & there is no cancer support here. And truely..unless its breast or prostate cancer oral cancer isn't even heard of....small town...I couldn't name another person with it....and my mom, like many many others in here...seems like one of the most unlikely persons to be dealing with it! Prayers with all of you.......Jane
