What a nightmare. As Christine noted,a PEG tube being displaced and/or embedded is all too common. Most hospitals have a "Patient Advocate"'s office or something similar. No matter how forceful an advocate you are, these bureaucracies are difficult to deal with unless you can get someone inside the power structure on your side. Even I have had to resort to using the Patient Advocate's office despite going to a CCC over PEG tube issues. The staff in the Ombudsmen or patient advocate or whatever the title are good listeners and know where to complain to get results.
Charm