 Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Callie, My heart aches for you and your family. I wish I had more help to offer you. I agree with getting a 2nd opinion. Start reaching out by phone if you can to MD Anderson or Hopkins. When my mom was diagnosed with pancreatic cancer we took her to Johns Hopkins in Baltimore, MD. They have an entire cancer center to help the entire family physically, spiritually and emotionally. This totally sucks and I wish there was something I could do to help. I will keep all of you in my prayers. This just sucks! As a caregiver we have to step up and fight for our loved one when they just don't seem to have the strength. Hugs, Wanda
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
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