quick update, mick is now no longer able to communicate at all it has been happening slowly over the past few days, it was mouthing words, and trying to write, than to small blinks and half smiles....to hand squeezes and eye flutters but now nothing it is sad however we know that means he feels little to no pain.....we feel he can still hear us so we talk to him while we are there and hold his hand and play him music.......we know it can be any time but at same time his vitals are all in normal range......just feel blessed to have had this journey w him and for him to know he is loved!!