Morgan,
That is out of my expertise as my tongue lesion was surgically removed. For those who had radiation as their primary method of treatment on this board--and there are many--they should know the protocol on that. But you are well within your rights to ask. Treatment is just not fun, is it?! Neither is it for a time afterwards, even now for me, things are not perfect. But, given the hand dealt, we are playing it, both of us, to the best of our ability, and taking advantage of our opponent--squamous cell oral cancer. If I asked or complained to my RO (my complaint was that the mask was unbearably tight on me at the end as I lost virtually no weight and my hair had grown--found out this summer I had lost some at the back though, now growing out). He tried to make me comfortable, but of course would always say, "you've got to make sure you kill the cancer by getting the target just right". So true. But we were killing/chasing "dust" I'd always think, as surgery supposedly got it all.

I'd be sure to check out Charm's idea on your chemo, regardless of the fact you have not had it as scheduled. Probably you've already gone & this is too late. Sounds like you are advocating for yourself very well.
Best,
Anne


SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021