Lisa, your words also bring back memories to me. In April last year my husband was diagnosed with stage 4 SCC involving most of his tongue, his lymph glands and his jaw bone. He was told by the first set of doctors that they wouldn't operate because it was too extensive. 2nd set of doctors said they would if we wished but it would be major and they didn't think it would make much difference in the end. His treatment was to extend his life but never to cure. The feeling of shock and daze is unbelievable when you hear things like this. I remember being in a supermarket totally dazed, having forgotten even why I was there.

But just so you know you will get through this. I came to this site and I read and read and read. I read blogs, questions, everything I could think of. And if i had a question I couldn't find the answers to I would ask (still do). The guys here on this forum will be the best mates you will ever have. They don't care if you come here to rant, rave, ramble or even cry. They will be here for you with words of comfort and advise. They know and understand because all of us have been in the same place.

Never give up hope and don't listen to statistics. Your husband is a young, healthy man and that will be in his favour very much so. My husband Steve's odds weren't so great when we started treatment but I'm happy to say almost 5 months out of treatment his last scans came back all clear. Everyone is different and most of all positive thoughts and believing that miracles happen will help get you through.

Wendy


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.