Hi Lisa,

Creating a comfy environment for my husband surrounded by the "things" he wanted nearby was one of the first things we did just before Rad Tx. He wanted to be in the family room with the big screen tv, lots of pillows so he could sleep sitting up and avoid choking. I bought a super soft blanket and set up a tray where all of his stuff was within each; ie water bottle, tv remote, tissues, meds, Aquaphor, and a bell so that he could call for me when I was in another part of the house. It became his cozy nest that he could retire to.

Another thing that helped when balancing 'what meds to take when' is to create a daily med schedule. From 5:30 am til 1:30 am I had listed ALL meds, wound care, feedings and TX. I would check off each thing as we accomplished it. It felt great to have some control at a time when so many things are out of your control. I would be happy to email you the schedule if you want to see it. Another benefit was that I would take these sheets to the ENT appts. and could answer any question about his daily care or get some advice when things needed tweaking.

All the best -
Anita