| Joined: Oct 2008 Posts: 247 Likes: 1 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Oct 2008 Posts: 247 Likes: 1 | Lisa, I did purchase a recliner with electric controls (at times he was too weak to use manual levers) and a built in heat pad, as my husband could not sleep lying down due to mucus.
Regarding getting things ready, many issues have to be dealt with as they occur. Initially, I would obsessively try to prepare ahead of time for all types of side effects, etc. I quickly learned that I needed energy for the immediate concerns or I would become too scattered and drained to be useful. I got a prescription for an anti-anxiety med and used it at night so I could fall asleep. As others have said, I especially needed this early on. Once tx is under way, you are busy and occupied and some of the free floating anxiety dissipates.
I did ask several friends to prepare soups and freeze them in small containers. One was a vegetarian "miracle broth" that we froze in ice cube trays then transferred to freezer bags. It was very convenient to have on hand as he starting taking fluids by mouth after tx. and a shot glass size was about all he could manage at first.
What helped me the most was being in daily contact with the nursing team at RO & MO. I discussed everything with them and they had wonderful suggestions and were a great support. If necessary, they would contact the MDs directly for me, so I didn't have to go through the general switchboard fiasco.
Everyone is correct in saying have him eat as much as possible now. We had a dietary consult prior to tx that was helpful. While my husband could still eat and drink, I added fortified milk (1 QT whole milk + 1 cup non-fat instant dry milk = 211 calories/14 grams protein/per cup) to everything possible. I even used it to make Carnation instant breakfast milkshakes.
A small issue is a bag ready to go for the car - plastic bags (useful for many things), book for you, phone #s such a pharmacy, etc. Often we would have to stay after radiation for infusions, MD check, chemo, etc., etc. So I needed to have his formula for PEG and pain meds with me. Actually, I often was able to relax and get some rest as he received infusions because I knew he was well taking care of at our tx center (it was the one place I didn't have to check up on what people were doing. Everyone was competent and caring). Lottie
CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin. 1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016
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Shell Shocked, no other way to say it
| lisa78015 | 01-13-2010 06:58 PM |
Re: Shell Shocked, no other way to say it
| Kelly211 | 01-13-2010 07:08 PM |
Re: Shell Shocked, no other way to say it
| lisa78015 | 01-13-2010 07:28 PM |
Re: Shell Shocked, no other way to say it
| EzJim | 01-13-2010 07:43 PM |
Re: Shell Shocked, no other way to say it
| lisa78015 | 01-13-2010 08:00 PM |
Re: Shell Shocked, no other way to say it
| Kelly211 | 01-13-2010 08:08 PM |
Re: Shell Shocked, no other way to say it
| EricS | 01-14-2010 01:03 AM |
Re: Shell Shocked, no other way to say it
| debandbill | 01-14-2010 01:42 AM |
Re: Shell Shocked, no other way to say it
| lisa78015 | 01-14-2010 01:50 AM |
Re: Shell Shocked, no other way to say it
| travelottie | 01-14-2010 02:25 AM |
Re: Shell Shocked, no other way to say it
| Geri | 01-14-2010 03:44 AM |
Re: Shell Shocked, no other way to say it
| WendyG | 01-14-2010 10:23 AM |
Re: Shell Shocked, no other way to say it
| Eileen | 01-14-2010 06:04 PM |
Re: Shell Shocked, no other way to say it
| EricS | 01-14-2010 08:32 PM |
Re: Shell Shocked, no other way to say it
| Deejer47 | 01-14-2010 10:06 PM |
Re: Shell Shocked, no other way to say it
| lisa78015 | 01-14-2010 10:12 PM |
Re: Shell Shocked, no other way to say it
| misskate | 01-14-2010 10:27 PM |
Re: Shell Shocked, no other way to say it
| Shelley K | 01-14-2010 11:01 PM |
Re: Shell Shocked, no other way to say it
| Marlene41 | 01-15-2010 03:51 AM |
Re: Shell Shocked, no other way to say it
| slim | 01-15-2010 05:36 PM |
Re: Shell Shocked, no other way to say it
| walknlite | 01-15-2010 05:38 PM |
Re: Shell Shocked, no other way to say it
| Ray in Texas | 01-15-2010 09:23 PM |
Re: Shell Shocked, no other way to say it
| Carmen M | 01-15-2010 09:28 PM |
Re: Shell Shocked, no other way to say it
| EricS | 01-16-2010 05:04 AM |
Re: Shell Shocked, no other way to say it
| lisa78015 | 01-17-2010 02:50 AM |
Re: Shell Shocked, no other way to say it
| Kelly211 | 01-17-2010 04:41 AM |
Re: Shell Shocked, no other way to say it
| Charm2017 | 01-17-2010 04:05 PM |
Re: Shell Shocked, no other way to say it
| AnitaFrances | 01-17-2010 05:39 PM |
Re: Shell Shocked, no other way to say it
| travelottie | 01-17-2010 06:12 PM |
Re: Shell Shocked, no other way to say it
| lisa78015 | 01-18-2010 04:54 AM |
Re: Shell Shocked, no other way to say it
| lisa78015 | 01-21-2010 12:24 AM |
Re: Shell Shocked, no other way to say it
| DonB | 01-14-2010 02:33 AM |
Re: Shell Shocked, no other way to say it
| Pandora99 | 01-14-2010 03:16 AM |
Re: Shell Shocked, no other way to say it
| slim | 01-13-2010 07:28 PM | |
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