Finally some good news, I guess, good news is relative. PET scan
shows a 3cm tumor at BOT along with the 3.4cm lymph (Really is interesting how 8 days ago I'd never heard the term squamous let alone had any idea where the jugulodigastric lymph nodes were) - We are meeting again with his oncologist tomorrow for the full treatment plan. Plan at this moment is to admit him to the hospital on Tuesday - mediport and biospy of tongue will be done Tuesday and chemo starts Wednesday. His oncologist left MD Anderson and is an original founder at South Texas Oncology Hematology and we feel very confident in him. His records were shipped today to City of Hope in LA and MD Anderson. My husband's employer has been very supportive. We have been offered the corporate jet to take him wherever we need. They also have a dedicated team of medical professionals that help with choosing doctors, coordinating care etc. We are very blessed with the resources being offered. Based upon the information that comes back to us from City of Hope and MD Anderson - we will decide whether the Tuesday admission will go forward. Wild roller coaster is the closest I can come to explaining the journey so far. I took some time this morning to visit my gp - emotions were getting the best of me - and some people may think it's weak - I did get a prescription to help calm my nerves. I have to say - I haven't cried in over 6 hours so - that's a good thing. I know I will still have bad days - but yesterday was really bad and I can't be that way for either Ken or my kids.

I so appreciate everyone's advice and welcoming spirit. I already know that this forum will be a key piece in making it through this BUT I cannot wait for the clear CT and PET so I can move on to being a motivator and providing answers and advice. Until then, thank you!


Lisaj, caregiver to Ken age 45 at DX, non smoker, social drinker, athlete
Stage IV SCC BOT, bilateral lymph involvement
DX 01/08/2010
Taxol, Cisplatin, IFEX
Treatment completed 6/2010 - all clear