Lisa, I remember well the shell shocked feeling, then finding this forum, and trying to catch up and educate myself on what to expect. It is very scary.

Most important right now is a second opinion at a CCC. We felt much better after the team at Dana-Faber concurred with the treatment plan from our local oncology center. I also wanted a second pathology examination (slides from biopsy were sent ahead) and this was included in the consultation.

It will help that your husband is otherwise healthy and strong. That was the case with my husband and he recently said that overall he is happy and grateful that treatment, although extremely difficult, was an option. We're leaving for a cruise next week - there is hope. Lottie


CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin.
1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED
Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016