Lisa,

I too have walked this path and I remember all the emotions you are feeling right now.

First off, I can recommend a notebook to keep all of this together. In particular, those plastic sheets that hold business cards. You will have so much paper work and doctors appts and information that each of the docs need. Keep a card from each office in that notebook...you will need to write the information a thousand times. All the reports, information sheets, etc will be where you can find them...use tabs for different categories. It will give you a little sense of control.

Secondly, I recommend that you at least get that second opinion from MDA. Hopefully, they will give you their blessings to receive treatment at home as they are probably familiar with the San Antonio physicians. My Bill was seen at a Comprehensive Cancer Center (Moffitt, Tampa, Fl) for a second opinion and we, with their OK, came home for the chemo and rads...we travel back for checkups, scans, etc.

As Wanda and others have said - you are in for a pretty rough ride but you and hubby will get thru this and this forum and all these people here who have been thru this will help you.

Deb