Hello Folks, thanks for the responses. Pam has surgery tomorrow to get her chemo port and a PEG. At her appointment today they removed her NG tube. When she was released from the hospital from her original surgery, she had a "diet" set up by a nutritionist and sounds like when she comes home tomorrow that she will have a new or revised diet. I know last week at her radiation similation, I was surprised that they were not weighing her. I figured if they were making her mask, they would want to know what her weight was when they made it. I more or less insisted they weigh her and I believe she came in at 93 pounds. At a follow up today, I was a little miffed when the nurse weighed her at almost 95 pounds and said she was concerned with her weight loss. When I questioned that I thought she was the same or a little more than last week, I found out they hadn't recorded her weight the week before when I made them take it but were comparing to the first consultation in early July. Sorry, off the subject a little here. I think Jeff made a very valid point that the numbers include people that may not follow the recommended treatments. I know part of my hang up on the numbers is that I have not heard a number from any of her doctors and since she has not asked, I have not wanted to bring it up in front of her. For me, there are a couple of reasons that I really want to know. One has to do with before she had a biopsy in June, I pretty much had the attitude that the sore on her tongue was no big deal and the other has to do with sacrifices we are making so that I can be her caregiver.

I did find the "Draft Copy" and have started reading it. One suggestion would be to link that to the "New Here - Read This First" post. I know I have been reading many of the different forums here but had not ran across that one before Christine mentioned it.