I was horrified to read your post. What a nightmare. I had my PEG tube placed by a GI that was highly recommended to me. That was just before my surgery 2 months ago. I still have it in and hardly notice it. I had a large BOT tumor removed and still am not able to eat by mouth. Radiation is causing swelling. I'll have it in for about 3 more weeks, when radiation is finished. What a difference things make when you have people taking care of you that know what they're doing. I'm glad to see you are now going to someone else. GOOD LUCK