Mariam,

You and your Dad have really had a difficult time. I understand the food tube spewing because of the type of valves on it (varies as one type is less messy than other I believe). We got a valve with an extra opening in it with a cap that easily falls off on an opening we never needed and I can't tell you how many times the cap blew off just from my husband coughing from mucositis or retching and spewing stomach and liquid osmolite all over the place. As sick as he was, he'd rip his clothes off as well.

Just a thought about the feeding tube not healing. First, what you're doing by going to another GI doctor sounds great. You might want to seek help from a wound specialist. Staph infections are very difficult to resolve and as some have noted above, there may be more going on. My mother-in-law had surgery wound problems (including staph) and she was seen frequently by a wound specialist who did the bandages and whatever. I think it requires a great deal of skill once you have a problem.


Sophie T.

CG to husband: SCC Stage 4, T4, N1, M0; non-smoker and very light social drinker; HPV+
induction chemo begun 7/07; chemo/radiation ended 10/10, first cat scan clear; scan on 5/9/08 clear, scan on 10/08 clear; scan 1/09 clear; scan 1/10 clear; passed away July 2, 2016