Update,
He went back to the ER on Nov 14th because the visiting nurse thought he was getting a cold. His tube was pushed down too far in his stomach so they gave him a new tube at the ER. Then the next day he saw the head of surgery and wound nurse and they put in yet another tube. The surgeon said a new PEG site would be too major of a surgery and that it was no guarantee that it would heal any better; and said once again that it is a bad situation but deal with it. Then the wound nurse put an ostomy bag/appliance over it and kept him overnight at hosp. It worked! He has to dump it 3 times a night but he has independence and is home. And we don't have to pack his fistula/constantly change his bandages anymore!! Dad is home now and I have had a break. Mom said he walked to the post office on his own.
He still isn't able to speak, eat, swallow and is still on suction. But the bag is a major relief. I am trying to get back into the flow of things..I had this precision type discipline during his treatment that I don't have now.