Unbelievable honey.
I thought I could offer some insight at the beginning of your post, because my husband also went through the horror of having his tube fail twice, replaced 4 times....etc. BUT....this is totally uncalled for.
Good for you that you've taken it out of what really sounds like an inexperienced, ignorant, or just stupid, doctor.
I pray that you can get some relief. I, like you, have had to put the "cancer" on the back-burner just to make sure that my husband makes it through the so-called cure.
Hang tough, babe, and please email me, if you would like to talk. I'm not sure that my profile works at this time, so feel free to contact me at [email protected].
Love,
Mandi

Stage III tonsil, Dx 8/14/2002,chemo and rad...reoccurance 8/3/07,Base of Tongue,vocal cords,stage IVA,total larynectomy and glossectomy 9/4/07 with pec flap...reoccurance Nov. '08 and Feb. '09 (positive margins remained after each operation) Second pec flap May 7, 2009. Still positive margins.