Mariam,
I still reeling from your nightmare! As long as I have been here, this is the worst PEG nightmare I have heard to date. This sounds to me like skilled nursing is required. Will your insurance pay for nurse in home visits? This is well above and beyond standard caregiver duties.


Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)