Amy is correct that this disease affects the caregiver, turns their life upside down, causes great emotional stress, all of it. I think what the people on the thread are trying to express is that the feelings and emotions of the patient are on a different level then a caregiver, it's not as easy for the patient to "think as clearly" as the caregiver, as it's the patient suffering the physical side along with the emotional side. I know for a fact that my husband didn't understand some of my emotions during treatment...........how could he?
With that said, every situation that takes place in the course of treatment is about both the patient and the caregiver..........I guess I would simply suggest that a caregiver realize there are going to be times that a patient will be unreasonable and with good reason. Then is the time to support the patient and help them deal with it their way.
MommaP, I think you are doing a fantastic job and Amy is giving good advice when she says not to lose yourself nor forget yourself in all of this. Your husband will probably do more that you don't understand during his road to recovery, trust me! It sounds like you have a good grip on it now.
Minnie