Sweety,

I remember at one point during treatment I was walking to use the bathroom and peered over towards the mirror. I was shocked that I didn't even recognize myself. From then on I used to hurry past the mirror and my wife kept asking why I was in such a hurry. She even started calling me Jar Jar Binks. My hair looked like a baby bird, thin and stringy looking. I had lost about 40 lbs then, soon to be 70. I couldn't eat, couldn't drink water without choking, couldn't move the bowels from the narcotics, was mean to everyone.

You are right, when you make it through the treatment...you can make it through just about anything in life.

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023