Sabrina,

Thank you for being human and especially thank you for being YOU!!

As I read your email, I sobbed and remembered how it REALLY was. The side you didn't tell many people because you didn't want them to worry. The side I hid from most people outside of the home but those inside had to see. The side that made me feel like I had let my wife and sons down. Yes, just as you say, it sucked and it was godawful! mad

It's a part of my life that I wish I could have fast forwarded at the time but it seems to rewind to that spot at the oddest moments. I thank God often for where I am today. wink

Thank you for sharing the truth, the whole truth and nothing but the truth, so help you God!

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023