Hi all,

Has anyone here had a total tongue removal? I'd love to get the experience of someone who has. I am really concerned about what my future quality of life will be like. I currently have lymphedema under my chin, a PEG which I rely on completely to feed myself, and I almost always have salvia in my mouth. This is 6 weeks after the surgery. I also started radiation a week ago. It would be helpful to know what will recover and what will not. I get that much of this is on me - I am working on swallowing and speaking every day, with limited success. Thank you for your time.