Hi Rose,

I'm so sorry to hear abut your surgery. I have had most of my tongue removed. I have a sliver of tongue remaining. I am able to swallow liquids and soft food, but it took time and perseverance . It was frustrating (and still is) but each small win is good.

I found ice chips really helped me as I was able to work out where the back of my throat is - I know this sounds weird but it helps to visualise where everything is. Plus that feeling of when you swallow that first ice chip is utter bliss.

What swallow exercises were you given to do?


F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients