Hi Pam,

Thanks for the hugs. Sleep was definately the issue. Plus the husband and I had a great honest and open conversation about how we were both feeling. It's lifted a weight from both of our shoulders. I slept so well last night laugh

My RT sessions are starting to have a regular time, so I can get myself into a good routine.This will really help me have plenty of rest as I'll be able to plan my days. Mondays are my fullest day where I have dietician, speech therapist, head and neck clinic and then post surgery clinic (every fortnight) on top of RT. 2 weeks down, 5 to go!

I've only got one dressing left to worry about, which is where I split open my abdominal wound. My husband changes that every other day and we've got it all down really well. I can't wait for it to heal as I can have a bath when it has.

My friends and family have been fantastic and have given me space that I need, so I'm feeling much more balanced.

I've been trying to book an appointment with my regular Doctor, but he's been fully booked when I've been available. I'll keep trying though.

I've got my confidence back with food and am being a bit more brave to try firmer foods (only when my husband is around though, just in case) and I'm creating a little "sore mouth" helpful foods section in my fridge and freezer. I have water ice pops, ice cubes, ice cream, yogurts, avocado (to blend in smoothies), cucumber (again to blend into a smoothie). I just need to make a bottle of bicarbonate of soda, salt and water mix into a bottle and pop it in.

I'm also being prescribed a cream to put onto the areas after my RT sessions. It's meant to be really good.

How is Scott getting on?


F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients