So happy your doing well Dizz. Sounds like your mentally ready for the chemo and radiation. I maybe following in your footsteps. My first post op appointment with the my surgeon is this morning. I’ve been having intermittent numbness of my Rt face and lips especially in the mornings. Lips feel swollen during that time. I also feel some swelling over the angle of my Lt jaw (? Parotid. Gland). Tongue is still burning and I have nausea every morning now for a couple hours then occasionally throughout the day. I have a feeling my check up for Stage 1 Partial Glossectomy is not going to be good. I’m prepared for the worst. I hope to be as strong as you Dizz should my pathway follow yours. Keep up the good work and thank for the detailed update. Hugs.


SSC Lt sublingual tongue; Age 62
Positive biopsy 20June2019
Staging done 2 Jul : Stage 1
Quit smoking 15 years ago; not a drinker; no HPV
Pet/ CT 6Jul2019 : Negative. Not even the Lt tongue lit up.
Partial Glossectomy 22Jul2019