I’ve had 6 recurrences, plus the original cancer. Each time was it was different. My first recurrence, I had radiation only as I was too sick to to anything else, and didn’t fully complete my original cancer treatment, which was supposed to be induction Chemo followed by chemoradiation. Actually, I left my top cancer center after I was in the hospital/nursing home for 6 months from induction chemo, and went back to my original oncologist.

My 2nd, I had cancer surgery only as treatment, neck dissection, mbeing too sick per my radiologist and oncologist, and thought it with be enough. This was back at the cancer center. I kept my ENT from there, but ditched my oncologist there.

My 3rd, I had cancer surgery only. Neck dissection.

My 4th and 5th, I had surgery, neck dissection, with IORT radiation in the OR, and then IMRT and Chemo, Cisplatin and Erbitux, epidermal growth factor, at a different cancer center on my own request. My other cancer center I felt didn’t proposing enough treatment.

My 6th and 7th, I had surgery, neck dissection, and IORT in the OR followed by Proton Radiation and chemo, Cisplatin.

I guess each case is differentso as is the doctors. You can go to three at different and get three different answers.


Last edited by PaulB; 05-16-2019 04:22 PM.

10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs