You can also call the doctor and ask what her recommendations are after she’s spoken with the RO. Doctors sometimes are so busy that they forget or they are thinking, “I’ll do it tomorrow,” and don’t get round to it. Keep them to their word. Even if it is leaving a message with the secretary, it may goad the doctor into calling you back.

Immunotherapy is no longer just a trial. It is now marketed as Keytruda and Optiva. There are always trials out there although the patient has to be screened before being accepted into a trial.

I would go for a second opinion as Kristen suggested, even if it is to hear about another treatment plan. It will give you options.

She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.