 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Re the PEG.....there is a NON SURGICAL option to the PEG and that is the nasal tube. It takes a minute to slide the tube up thru your nose and into your stomach. It's rigid at first because it has a thin metal stip in the tube. Once in place they take an X Ray to make sure it's where they want it to be and then they slide the metal strip out. It's meant for short term uses which is exactly what we need. I refused the PEG but 1 week post Tx I was in serious trouble. I couldn't swallow without sever pain and then I would gag and toss those cookies. I was going down hill fast but they talked me into the nasal tube and wow I used it for 2 weeks and was allowed by my doc to pull it out at home myself. It made a HUGE difference in my recovery. No pain, no discomfort ever. Even took showers with it. I can't understand why this isn't pushed way ahead of that PEG???
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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