Angielina,

Sorry you and Larry have had to join our club here but with the HPV+ diagnosis he stands a good chance of beating this cancer and leading a totally normal life thereafter. That said, I need to warn you that this treatment he is undergoing will get worse usually with weeks 4 thru the 3rd week after treatment being the most difficult for just about everyone so just be prepared.

I see you mentioned the PEG. Please only use that when absolutely necessary. Make him use his swallowing muscles every day. They can "forget" quickly what it is their supposed to do unless they are used frequently. A lot of us didn't have a PEG and we still managed to get thru the treatment.

You are lucky that you found this site as there are tons of us that have been there done it so use us and don't be afraid to ask us ANYTHING. This treatment will most likely affect everyone in your household, especially you and there are pleanty of current and former Caregivers to lend you their experiences.

There will be many different phases that he will go thru during and after this treatment including loosing his taste which is early on so as something happens or changes please let us know and we'll tell you what worked best for us.

BTW we are open 24/7 and appts are not necessary. lol


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.