I wouldn't say they tried to deceive you or lie, and definably are not trying to sweep this under the rug, but somewhere along the line there was a loss of communication, information, questions or was not enough results at that time, and I'm just going by what information was supplied, but I'm not a doctor. When you meet with these doctors, it can be fast and furious, and information can be forgotten or words not easily understood or misconstrued. Maybe there was intention to meet you earlier, but with your hospitalization is wasn't possible until recently. Anyway, I still go by what I said, get copies of everything, so you can see for yourself, ask questions, and hopefully there will be some other treatment available now or in the future. The Erbitux may just as well work, and know a few on another blog on them for two years, so far.

I didn't have treatment for a while after my initial chemo, over a year, then I could, but only radiation, than only surgery, etc etc, and I'm still having treatment for a cure for my 8th time in four years, hopefully, although every situation is different, I had to find the right doctor(s) to continue. I wish the same for you.