I'm sorry to hear this Shawn. The Erbitux may be a viable option, but I would get a 2nd, even a 3rd opinion or whatever it takes. I don't know how they changed your pathology from your neck dissection, and none had ECE, as far as I know, and how can they tell if there is microscopic cancer in the entire neck, muscle, fibrotic tissue, and otherwise, from the modified neck dissection on 9/11/13, without them all being biopsied, unless it's an assumption? And you were only told there was positive margins in the tonsil on 9/18/13, unless information was held back or further biopsy testing just came back, but that's almost a month ago, and your fibrosis came after surgery, and now they say it's cancerous too? I would obtain a copy of all your scans, surgeries, pathology, and get another opinion from the best Cancer, ENT Hospital wherever they are. Hope lodge offers free accomodations at 26 different locations throughout the country, most near a major comprehensive cancer center. I stayed at one in NYC, and there are a dozen different hospitals in vicinity of Hope Lodge. Some Hospital, like John Hopkins offer consultations via telephone, but like all others, need all your records, unless you only want to do the Erbitux for now, and take it from there. I wish you well.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs