OP Senior Member (100+ posts) Joined: Aug 2013 Posts: 144 | Thank you guys, I guess you guys were the first to see what was just under my skin when I wrote down the turn of events. I think that reading what Paulb. wrote just made me feel as if I had done something wrong, I am sure there was things that I could have done better Ie. keeping track of my own treatment more diligently. its kinda messed up that you have to learn things along the way that could only help you if you had a time machine. I will get those records and have fresh eyes look at them. I am too nice in the regards of go with the flow. and don't question the experts. But they are only human as well. I hope I didn't come across as an ass. shawn u.
. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF 3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.
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