Shawn, I guess it's all a misunderstanding. What I didn't like was the quote about me, "I think that reading what Paulb. wrote just made me feel as if I had done something wrong,...", which was far from what I was trying to do. As far as something was amis, which is related to my first post, I was really surprised to hear your incurable diagnosis after believing only the tonsil had microscopic cancer, and was hoping there was some kind of misunderstanding along the line, for your sake, and reread your history, and couldn't figure out how the doctors, who are probably correct, said there was cancer all in the neck, major structures, when these were not removed during the dissection, scanned again, biopsied again, and wasn't mentioned by you before. I'm assuming the extent of disease wasn't mentioned to you before by the docors or was not known at some point until the tumor board met, and was then told. Not that it matters to me or I need to know, but for you, so is the reason I recommended getting all your records, getting another opinion, and you did nothing wrong. Be well.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs