"Above & Beyond" Member (300+ posts) Joined: Feb 2004 Posts: 372 | Hey Nicki, God bless you and your husband. We felt the same way last year...never any real health issues until Dan got cancer. It's weird what you don't realize is something to get checked. He had a sore on his tongue for months and months before he got it checked and then it took a few more months to get passed to the right people to get the right diagnosis! Dan lost about 50 lbs, and definitely the PEG was needed. He had about 6 weeks that he couldn't even talk at all. He used the PEG starting the 3rd week of rad/chemo and used it for 5 months. He couldn't swallow anything, not even water for quite a while. He had some major constipation problems due to his narcotics. We got help for that but wished we had gotton help ahead of time. Ask for prescription drugs for constipation...it's the only thing that worked for Dan. I also had to get some help for anxiety and sleeplessness. I took Xanax for anxiety and Ambien to sleep at nite. Both helped me so much. We had a great support system thru our church and Bible study, which was truly from God. My prayers are with you as you begin this journey. I always felt God walking beside me thru it all...it was (and still is) very hard, but you can do it! Deb
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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