"Above & Beyond" Member (500+ posts) Joined: Oct 2011 Posts: 805 | I'm not trying to be a downer, but please remember that the hardest time is the 2-4 weeks AFTER tx has ended. We did not know this and were completely unprepared for how bad it got. That's when I became a member and got on the forums. I was scared. Through everyone here I found out what we were going through was normal. That made it easier to keep up the fight. I was able to reassure Kevin that all was normal and to hang in there. It took about 4 weeks. Our last tx was 10/26 and I remember he ate Thanksgiiving dinner with the family. He didn't taste it all correctly, but he ate and that was awesome! Like I said, not to be a downer, just a realist. Hang in there. Kathy
Kathy wife/caregiver to: Kevin age:53 Dx 7/15/11 HPV16+ SCC Stage IV BOT/R Non smoker, casual drinker 7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11 PEG placed 9/1/11 Removed 11/8/11 Clear PET 10/12 and 10/13 and ct in 6/14 |