Chiming in here.... I am to start both chemo and radiation on the 8th (perhaps later if I do the Erbitux/Cisplatin trial). On the 1st, I go in for my port. I was told I will be grateful for it down the road since it makes giving of drugs and fluids that much easier, and will keep my veins from being damaged.
After gaining some knowledge from this forum, I asked about a PEG. All 3 primary docs said that unless my weight drops by 10%+, they don't want to go that route. Reasoning is that muscles used to swallow etc will basically atrophy; also they feel that the more I am involved in getting/maintaining my sustenance, the better all around. Makes sense to me, but if the time comes where I need a PEG, I will swallow my pride -if nothing else - (bad pun) and not argue.


Stage 4: Mid-line BOT primary; Left Lymph Node 4-5cm HPV+
Chemo/Rad 10/08/12; 3 big doses cisplatin
Updated 10/16 refusing Cisplatin; due to side effects
Considering Carboplatin; discussing with doctors.
Corp. Trainer- South New Jersey
Life is What Happens When You're Busy Making Other Plans.