 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I'm just like anyone else on this site so please don't feel like you have to explain why you disagree with my thoughts. I'm more of a risk taker than most and my posts probably reflect that from time to time but I do explain that I'm not in any way a doctor, just a survivor so hopefully readers take what I say with that "grain of salt". I do always advise that they seek alternative opinions from a CCC if possible and certainly anyone would be foolish to ignore what a team from a CCC advises. IMO everyone with ANY cancer should have access to a CCC before any Tx is done.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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