What they are recommending is exactly what we did. It was hard, but not awful. Kevin hated the 5FU because he was sick and knew the stuff was still pumping into him. The other you got and left. The 5FU you bring home and wear on your belt loop. It was awkward. He had to resist the temptation to pull it out!!
I hear what David is saying about it being overkill, but, I don't know. Maybe overkill was what he wanted? Kevin I mean. We trusted our Dr and it's what he recommended so we did it. Just FYI though, cistplatin has damaged Kevin and David's hearing. One of the side effects.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14