| Joined: May 2010 Posts: 224 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2010 Posts: 224 | I will say this, like others have said, everyone is different. Some fly through this with very minimal side effects. Others, like myself, have one heck of a time.
I will say I have not heard of one person that received radiation being able to continue to go to work past week 3, but that doesn't mean it can't happen!
I developed mouth sores week 2, was unable to eat or drink anything starting end of week 2, had a PICC line put in that is like a iv going straight to your heart because peg couldn't be placed till the beginning of week 5, so I went 12 days without eating or drinking anything before they put the PICC in. Most of my issues stemmed from my nausea that they just couldn't get under control. I personally think the thick mucous would cause me to gag and be nauseated, cuz i think my stomach would just get so full of it. But it probably also had to do with the other issue I got when the put the peg in as well. They took it out, but had to put it back in shortly after PEG placement cuz I was having issues and wasn't even able to get 1 can in a day through it, but most people can use it and get 6 cans in a day no problem.
I had a dry mouth first and then the thick saliva came, and I lost my voice around week 5 for about 3 or 4 weeks. Lost the hair on the back of my head, maybe about a inch or 2 high but from ear to ear (radiated areas).
I tell you all of this not to scare you, but just to share experience.
If I would have known what was going to happen to me before I went through radiation, I still would have gone through it. The fact that I am alive and 6 months post treatment and as far as I know still cancer free, 6 month scan result to come on monday, is reason enough to go through everything I did. I had a total of 7 months of "hell" time, and I feel very fortunate, as like i say some go much longer or some shorter with the time frames of treatment and as i call it "hell" time, but i will say this, even if this comes back, i am still glad i went through all i did, as it's kept it away for this long!
25/female at diagnosis Dx;stage 3 SCC tongue 03/25/2010 Surgery 04/13/2010 Trach,ng tube, peg feeding tube Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue. 30 rounds IMRT ended July 15,2010 | | |
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New member, tongue biopsy today
| buster3795 | 12-09-2010 11:59 AM |
Re: New member, tongue biopsy today
| davidcpa | 12-09-2010 01:30 PM |
Re: New member, tongue biopsy today
| ChristineB | 12-09-2010 02:28 PM |
Re: New member, tongue biopsy today
| buster3795 | 12-09-2010 02:59 PM |
Re: New member, tongue biopsy today
| David2 | 12-09-2010 03:46 PM |
Re: New member, tongue biopsy today
| zengalib | 12-09-2010 03:51 PM |
Re: New member, tongue biopsy today
| ConnieFL | 12-09-2010 06:08 PM |
Re: New member, tongue biopsy today
| davidcpa | 12-09-2010 08:32 PM |
Re: New member, tongue biopsy today
| EzJim | 12-10-2010 08:11 PM |
Re: New member, tongue biopsy today
| buster3795 | 12-10-2010 09:11 PM |
Re: New member, tongue biopsy today
| buster3795 | 01-17-2011 10:34 AM |
Re: New member, tongue biopsy today
| davidcpa | 01-17-2011 02:16 PM |
Re: New member, tongue biopsy today
| ChristineB | 01-17-2011 04:39 PM |
Re: New member, tongue biopsy today
| Michelle Ann | 01-17-2011 04:54 PM |
Re: New member, tongue biopsy today
| suzanne98 | 01-17-2011 05:52 PM |
Re: New member, tongue biopsy today
| AnneO | 01-18-2011 12:32 AM |
Re: New member, tongue biopsy today
| bethers0808 | 01-20-2011 01:12 PM |
Re: New member, tongue biopsy today
| buster3795 | 01-22-2011 10:56 AM |
Re: New member, tongue biopsy today
| bill in nc | 01-22-2011 01:00 PM |
Re: New member, tongue biopsy today
| ChristineB | 01-22-2011 03:36 PM |
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| DonB | 01-22-2011 03:55 PM |
Re: New member, tongue biopsy today
| buster3795 | 01-28-2011 03:12 AM |
Re: New member, tongue biopsy today
| Cheryld | 01-28-2011 03:25 AM |
Re: New member, tongue biopsy today
| Susan3175 | 01-28-2011 05:25 AM |
Re: New member, tongue biopsy today
| suzanne98 | 01-30-2011 02:47 AM |
Re: New member, tongue biopsy today
| ChristineB | 01-30-2011 03:35 AM |
Re: New member, tongue biopsy today
| buster3795 | 02-06-2011 11:58 AM |
Re: New member, tongue biopsy today
| NonaChris | 02-06-2011 12:45 PM |
Re: New member, tongue biopsy today
| joann2351 | 02-10-2011 03:39 AM |
Re: New member, tongue biopsy today
| buster3795 | 02-13-2011 07:56 PM |
Re: New member, tongue biopsy today
| buster3795 | 02-20-2011 07:57 PM |
Re: New member, tongue biopsy today
| Michele57 | 02-20-2011 09:40 PM |
Re: New member, tongue biopsy today
| ChristineB | 02-20-2011 11:05 PM |
Re: New member, tongue biopsy today
| buster3795 | 02-28-2011 07:33 AM |
Re: New member, tongue biopsy today
| Karenj | 02-28-2011 02:12 PM |
Re: New member, tongue biopsy today
| ChristineB | 02-28-2011 02:59 PM |
Re: New member, tongue biopsy today
| Cheryld | 03-02-2011 03:10 PM |
Re: New member, tongue biopsy today
| buster3795 | 03-30-2011 07:21 PM |
Re: New member, tongue biopsy today
| Jenslp | 03-30-2011 08:12 PM |
Re: New member, tongue biopsy today
| Cheryld | 03-31-2011 04:26 AM |
Re: New member, tongue biopsy today
| ChristineB | 03-31-2011 01:45 PM |
Re: New member, tongue biopsy today
| buster3795 | 05-21-2011 07:38 AM |
Re: New member, tongue biopsy today
| davidcpa | 05-21-2011 12:24 PM |
Re: New member, tongue biopsy today
| buster3795 | 05-21-2011 09:28 PM |
Re: New member, tongue biopsy today
| debandbill | 05-22-2011 01:59 AM |
Re: New member, tongue biopsy today
| suzanne98 | 05-24-2011 01:22 PM |
Re: New member, tongue biopsy today
| buster3795 | 07-19-2011 03:26 PM |
Re: New member, tongue biopsy today
| davidcpa | 07-19-2011 03:58 PM |
Re: New member, tongue biopsy today
| buster3795 | 12-01-2011 12:09 AM |
Re: New member, tongue biopsy today
| ConnieFL | 12-01-2011 12:55 AM |
Re: New member, tongue biopsy today
| Cheryld | 12-01-2011 01:02 AM |
Re: New member, tongue biopsy today
| buster3795 | 01-26-2012 05:49 PM |
Re: New member, tongue biopsy today
| EricS | 01-26-2012 07:13 PM |
Re: New member, tongue biopsy today
| ChristineB | 01-26-2012 09:39 PM |
Re: New member, tongue biopsy today
| buster3795 | 01-31-2012 06:06 PM |
Re: New member, tongue biopsy today
| Cheryld | 01-31-2012 09:26 PM |
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| Maria | 01-31-2012 10:12 PM |
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| zengalib | 01-31-2012 10:27 PM |
Re: New member, tongue biopsy today
| ChristineB | 01-31-2012 11:50 PM |
Re: New member, tongue biopsy today
| SUEZ | 02-01-2012 07:00 PM |
Re: New member, tongue biopsy today
| buster3795 | 02-22-2012 11:28 PM |
Re: New member, tongue biopsy today
| Maria | 02-22-2012 11:54 PM |
Re: New member, tongue biopsy today
| ChristineB | 02-23-2012 12:54 AM |
Re: New member, tongue biopsy today
| Cheryld | 02-23-2012 03:02 AM |
Re: New member, tongue biopsy today
| buster3795 | 05-27-2012 02:26 PM |
Re: New member, tongue biopsy today
| julieann | 05-08-2013 04:37 AM |
Re: New member, tongue biopsy today
| davidcpa | 05-27-2012 02:39 PM |
Re: New member, tongue biopsy today
| Cheryld | 05-27-2012 10:42 PM |
Re: New member, tongue biopsy today
| buster3795 | 05-07-2013 11:22 PM |
Re: New member, tongue biopsy today
| Cheryld | 05-07-2013 11:41 PM |
Re: New member, tongue biopsy today
| ChristineB | 05-08-2013 01:04 AM | |
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