| Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Each of us can respond differently and you will hear that a lot for the next 2 years so you might as well just answer yourself the next time you ask a question. lol
That said most of us loose our taste almost totally in stages; loose weight; loose the hair on the backs of our heads; loose our whiskers; develop painful mouth sores; loose our voices for a short period; become nauseated; get dehydrated; develop constipation; produce a massive amount of thick saliva before developing dry mouth and may develop swallowing problems and thyroid problems. You may of course have none, some or all of these. You also didn't mention if you are getting chemo as that can add to the severity of some of these things mentioned. Most don't feel the brunt of our Tx until about the 4th week and most have the roughest time the 2 to 3 weeks post TX. All I am left with today is maybe a 5% dry mouth; a 5% lack of taste and Hypothyroidism compared to my pre Tx normals. These are the physical side effects and you may also have to deal with mental issues. Point of all of this doom and gloom is to let you know that if you develop any of these side effects you are just NORMAL and don't let any inexperienced doctor/nurse/whatever lead you to believe otherwise.
I'm sure others will add to this post as we all had our unique moments during our Tx and recovery.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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New member, tongue biopsy today
| buster3795 | 12-09-2010 11:59 AM |
Re: New member, tongue biopsy today
| davidcpa | 12-09-2010 01:30 PM |
Re: New member, tongue biopsy today
| ChristineB | 12-09-2010 02:28 PM |
Re: New member, tongue biopsy today
| buster3795 | 12-09-2010 02:59 PM |
Re: New member, tongue biopsy today
| David2 | 12-09-2010 03:46 PM |
Re: New member, tongue biopsy today
| zengalib | 12-09-2010 03:51 PM |
Re: New member, tongue biopsy today
| ConnieFL | 12-09-2010 06:08 PM |
Re: New member, tongue biopsy today
| davidcpa | 12-09-2010 08:32 PM |
Re: New member, tongue biopsy today
| EzJim | 12-10-2010 08:11 PM |
Re: New member, tongue biopsy today
| buster3795 | 12-10-2010 09:11 PM |
Re: New member, tongue biopsy today
| buster3795 | 01-17-2011 10:34 AM |
Re: New member, tongue biopsy today
| davidcpa | 01-17-2011 02:16 PM |
Re: New member, tongue biopsy today
| ChristineB | 01-17-2011 04:39 PM |
Re: New member, tongue biopsy today
| Michelle Ann | 01-17-2011 04:54 PM |
Re: New member, tongue biopsy today
| suzanne98 | 01-17-2011 05:52 PM |
Re: New member, tongue biopsy today
| AnneO | 01-18-2011 12:32 AM |
Re: New member, tongue biopsy today
| bethers0808 | 01-20-2011 01:12 PM |
Re: New member, tongue biopsy today
| buster3795 | 01-22-2011 10:56 AM |
Re: New member, tongue biopsy today
| bill in nc | 01-22-2011 01:00 PM |
Re: New member, tongue biopsy today
| ChristineB | 01-22-2011 03:36 PM |
Re: New member, tongue biopsy today
| DonB | 01-22-2011 03:55 PM |
Re: New member, tongue biopsy today
| buster3795 | 01-28-2011 03:12 AM |
Re: New member, tongue biopsy today
| Cheryld | 01-28-2011 03:25 AM |
Re: New member, tongue biopsy today
| Susan3175 | 01-28-2011 05:25 AM |
Re: New member, tongue biopsy today
| suzanne98 | 01-30-2011 02:47 AM |
Re: New member, tongue biopsy today
| ChristineB | 01-30-2011 03:35 AM |
Re: New member, tongue biopsy today
| buster3795 | 02-06-2011 11:58 AM |
Re: New member, tongue biopsy today
| NonaChris | 02-06-2011 12:45 PM |
Re: New member, tongue biopsy today
| joann2351 | 02-10-2011 03:39 AM |
Re: New member, tongue biopsy today
| buster3795 | 02-13-2011 07:56 PM |
Re: New member, tongue biopsy today
| buster3795 | 02-20-2011 07:57 PM |
Re: New member, tongue biopsy today
| Michele57 | 02-20-2011 09:40 PM |
Re: New member, tongue biopsy today
| ChristineB | 02-20-2011 11:05 PM |
Re: New member, tongue biopsy today
| buster3795 | 02-28-2011 07:33 AM |
Re: New member, tongue biopsy today
| Karenj | 02-28-2011 02:12 PM |
Re: New member, tongue biopsy today
| ChristineB | 02-28-2011 02:59 PM |
Re: New member, tongue biopsy today
| Cheryld | 03-02-2011 03:10 PM |
Re: New member, tongue biopsy today
| buster3795 | 03-30-2011 07:21 PM |
Re: New member, tongue biopsy today
| Jenslp | 03-30-2011 08:12 PM |
Re: New member, tongue biopsy today
| Cheryld | 03-31-2011 04:26 AM |
Re: New member, tongue biopsy today
| ChristineB | 03-31-2011 01:45 PM |
Re: New member, tongue biopsy today
| buster3795 | 05-21-2011 07:38 AM |
Re: New member, tongue biopsy today
| davidcpa | 05-21-2011 12:24 PM |
Re: New member, tongue biopsy today
| buster3795 | 05-21-2011 09:28 PM |
Re: New member, tongue biopsy today
| debandbill | 05-22-2011 01:59 AM |
Re: New member, tongue biopsy today
| suzanne98 | 05-24-2011 01:22 PM |
Re: New member, tongue biopsy today
| buster3795 | 07-19-2011 03:26 PM |
Re: New member, tongue biopsy today
| davidcpa | 07-19-2011 03:58 PM |
Re: New member, tongue biopsy today
| buster3795 | 12-01-2011 12:09 AM |
Re: New member, tongue biopsy today
| ConnieFL | 12-01-2011 12:55 AM |
Re: New member, tongue biopsy today
| Cheryld | 12-01-2011 01:02 AM |
Re: New member, tongue biopsy today
| buster3795 | 01-26-2012 05:49 PM |
Re: New member, tongue biopsy today
| EricS | 01-26-2012 07:13 PM |
Re: New member, tongue biopsy today
| ChristineB | 01-26-2012 09:39 PM |
Re: New member, tongue biopsy today
| buster3795 | 01-31-2012 06:06 PM |
Re: New member, tongue biopsy today
| Cheryld | 01-31-2012 09:26 PM |
Re: New member, tongue biopsy today
| Maria | 01-31-2012 10:12 PM |
Re: New member, tongue biopsy today
| zengalib | 01-31-2012 10:27 PM |
Re: New member, tongue biopsy today
| ChristineB | 01-31-2012 11:50 PM |
Re: New member, tongue biopsy today
| SUEZ | 02-01-2012 07:00 PM |
Re: New member, tongue biopsy today
| buster3795 | 02-22-2012 11:28 PM |
Re: New member, tongue biopsy today
| Maria | 02-22-2012 11:54 PM |
Re: New member, tongue biopsy today
| ChristineB | 02-23-2012 12:54 AM |
Re: New member, tongue biopsy today
| Cheryld | 02-23-2012 03:02 AM |
Re: New member, tongue biopsy today
| buster3795 | 05-27-2012 02:26 PM |
Re: New member, tongue biopsy today
| julieann | 05-08-2013 04:37 AM |
Re: New member, tongue biopsy today
| davidcpa | 05-27-2012 02:39 PM |
Re: New member, tongue biopsy today
| Cheryld | 05-27-2012 10:42 PM |
Re: New member, tongue biopsy today
| buster3795 | 05-07-2013 11:22 PM |
Re: New member, tongue biopsy today
| Cheryld | 05-07-2013 11:41 PM |
Re: New member, tongue biopsy today
| ChristineB | 05-08-2013 01:04 AM | |
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