| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Oh David!!!! Dont scare the poor guy so much. These are all side effects that are annoying and uncomfortable and yes, normal. It can get difficult but you will get thru this. Looking back it was only a few months of my life that I felt crappy and miserable.
Just remember to keep up your nutrition with minimun 48 oz water and 2500 calories daily. Getting more is even better. The better your nutrition, the easier it will be to get thru this. Make sure even with the feeding tube you continue to swallow daily. Even if it means taking small sips of water all day til you get the whole bottle down. Some members would put the bottles they needed to drink on their kitchen counter and when they were gone then you knew you drank enough that day. Keep eating as long as you possibly can, try your best to eat thru the whole thing. Chewing and swallowing are things that your muscles can forget how to do if they arent used.
If you havent started this yet, its ok. Make sure you do stretching exercises for your mouth several times per day. Open your mouth as wide as possible and hold it open for a few seconds. This is very important so you can avoid trismus. Thats where you can barely open your mouth.
Let me know if you need any pointers about using the peg tube. Im full of tricks to make it easier. The peg tube is an easy way to get additional water too. Just add an extra can or two of water to your formula. I always mix mine with some high protein powder, that helps healing.
Hang in there. It will get difficult but we are here and will guide you thru this. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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New member, tongue biopsy today
| buster3795 | 12-09-2010 11:59 AM |
Re: New member, tongue biopsy today
| davidcpa | 12-09-2010 01:30 PM |
Re: New member, tongue biopsy today
| ChristineB | 12-09-2010 02:28 PM |
Re: New member, tongue biopsy today
| buster3795 | 12-09-2010 02:59 PM |
Re: New member, tongue biopsy today
| David2 | 12-09-2010 03:46 PM |
Re: New member, tongue biopsy today
| zengalib | 12-09-2010 03:51 PM |
Re: New member, tongue biopsy today
| ConnieFL | 12-09-2010 06:08 PM |
Re: New member, tongue biopsy today
| davidcpa | 12-09-2010 08:32 PM |
Re: New member, tongue biopsy today
| EzJim | 12-10-2010 08:11 PM |
Re: New member, tongue biopsy today
| buster3795 | 12-10-2010 09:11 PM |
Re: New member, tongue biopsy today
| buster3795 | 01-17-2011 10:34 AM |
Re: New member, tongue biopsy today
| davidcpa | 01-17-2011 02:16 PM |
Re: New member, tongue biopsy today
| ChristineB | 01-17-2011 04:39 PM |
Re: New member, tongue biopsy today
| Michelle Ann | 01-17-2011 04:54 PM |
Re: New member, tongue biopsy today
| suzanne98 | 01-17-2011 05:52 PM |
Re: New member, tongue biopsy today
| AnneO | 01-18-2011 12:32 AM |
Re: New member, tongue biopsy today
| bethers0808 | 01-20-2011 01:12 PM |
Re: New member, tongue biopsy today
| buster3795 | 01-22-2011 10:56 AM |
Re: New member, tongue biopsy today
| bill in nc | 01-22-2011 01:00 PM |
Re: New member, tongue biopsy today
| ChristineB | 01-22-2011 03:36 PM |
Re: New member, tongue biopsy today
| DonB | 01-22-2011 03:55 PM |
Re: New member, tongue biopsy today
| buster3795 | 01-28-2011 03:12 AM |
Re: New member, tongue biopsy today
| Cheryld | 01-28-2011 03:25 AM |
Re: New member, tongue biopsy today
| Susan3175 | 01-28-2011 05:25 AM |
Re: New member, tongue biopsy today
| suzanne98 | 01-30-2011 02:47 AM |
Re: New member, tongue biopsy today
| ChristineB | 01-30-2011 03:35 AM |
Re: New member, tongue biopsy today
| buster3795 | 02-06-2011 11:58 AM |
Re: New member, tongue biopsy today
| NonaChris | 02-06-2011 12:45 PM |
Re: New member, tongue biopsy today
| joann2351 | 02-10-2011 03:39 AM |
Re: New member, tongue biopsy today
| buster3795 | 02-13-2011 07:56 PM |
Re: New member, tongue biopsy today
| buster3795 | 02-20-2011 07:57 PM |
Re: New member, tongue biopsy today
| Michele57 | 02-20-2011 09:40 PM |
Re: New member, tongue biopsy today
| ChristineB | 02-20-2011 11:05 PM |
Re: New member, tongue biopsy today
| buster3795 | 02-28-2011 07:33 AM |
Re: New member, tongue biopsy today
| Karenj | 02-28-2011 02:12 PM |
Re: New member, tongue biopsy today
| ChristineB | 02-28-2011 02:59 PM |
Re: New member, tongue biopsy today
| Cheryld | 03-02-2011 03:10 PM |
Re: New member, tongue biopsy today
| buster3795 | 03-30-2011 07:21 PM |
Re: New member, tongue biopsy today
| Jenslp | 03-30-2011 08:12 PM |
Re: New member, tongue biopsy today
| Cheryld | 03-31-2011 04:26 AM |
Re: New member, tongue biopsy today
| ChristineB | 03-31-2011 01:45 PM |
Re: New member, tongue biopsy today
| buster3795 | 05-21-2011 07:38 AM |
Re: New member, tongue biopsy today
| davidcpa | 05-21-2011 12:24 PM |
Re: New member, tongue biopsy today
| buster3795 | 05-21-2011 09:28 PM |
Re: New member, tongue biopsy today
| debandbill | 05-22-2011 01:59 AM |
Re: New member, tongue biopsy today
| suzanne98 | 05-24-2011 01:22 PM |
Re: New member, tongue biopsy today
| buster3795 | 07-19-2011 03:26 PM |
Re: New member, tongue biopsy today
| davidcpa | 07-19-2011 03:58 PM |
Re: New member, tongue biopsy today
| buster3795 | 12-01-2011 12:09 AM |
Re: New member, tongue biopsy today
| ConnieFL | 12-01-2011 12:55 AM |
Re: New member, tongue biopsy today
| Cheryld | 12-01-2011 01:02 AM |
Re: New member, tongue biopsy today
| buster3795 | 01-26-2012 05:49 PM |
Re: New member, tongue biopsy today
| EricS | 01-26-2012 07:13 PM |
Re: New member, tongue biopsy today
| ChristineB | 01-26-2012 09:39 PM |
Re: New member, tongue biopsy today
| buster3795 | 01-31-2012 06:06 PM |
Re: New member, tongue biopsy today
| Cheryld | 01-31-2012 09:26 PM |
Re: New member, tongue biopsy today
| Maria | 01-31-2012 10:12 PM |
Re: New member, tongue biopsy today
| zengalib | 01-31-2012 10:27 PM |
Re: New member, tongue biopsy today
| ChristineB | 01-31-2012 11:50 PM |
Re: New member, tongue biopsy today
| SUEZ | 02-01-2012 07:00 PM |
Re: New member, tongue biopsy today
| buster3795 | 02-22-2012 11:28 PM |
Re: New member, tongue biopsy today
| Maria | 02-22-2012 11:54 PM |
Re: New member, tongue biopsy today
| ChristineB | 02-23-2012 12:54 AM |
Re: New member, tongue biopsy today
| Cheryld | 02-23-2012 03:02 AM |
Re: New member, tongue biopsy today
| buster3795 | 05-27-2012 02:26 PM |
Re: New member, tongue biopsy today
| julieann | 05-08-2013 04:37 AM |
Re: New member, tongue biopsy today
| davidcpa | 05-27-2012 02:39 PM |
Re: New member, tongue biopsy today
| Cheryld | 05-27-2012 10:42 PM |
Re: New member, tongue biopsy today
| buster3795 | 05-07-2013 11:22 PM |
Re: New member, tongue biopsy today
| Cheryld | 05-07-2013 11:41 PM |
Re: New member, tongue biopsy today
| ChristineB | 05-08-2013 01:04 AM | |
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