First - Liz thank you so much for staying "active" on these boards. Unfortunately death is sometimes a reality of any type of cancer. Your personal experience with all of this is so invaluable. I think with most "health based" message boards, people take what they want and then when they are through treatments or have lost their loved one they move on. I stay active on these message boards because I have been helped so much by everyone and if I can answer a question for someone or offer some small support, then I still "belong" here. This is going to sound dumb but I am also slightly paranoid that if I leave that John's cancer will come back. I know that sounds silly but that is my reality. So....here I will stay until I feel it is time to move on.

Again thank you so much to all the "active" posters. Your knowledge and personal experiences are greatly appreciated.

Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2