Susan,

I�m not sure if anyone else mentioned to you, but I�ve found it helpful to bring a recorder to each doctor appointment. My old tape one broke and I just bought a digital voice recorder � a much better option since I can now save the file to my PC. I�ve also noticed that if a doctor refuses to let you record your conversation, this is a red flag to stay away from that doctor.

Also, ask for copies of all tests � biopsy reports, PET scans, blood work, etc. You will need these if you go for a 2nd or 3rd opinion. I also kept a binder with copies of these reports that I would take to the doctor appointments. And I recently scanned all these reports and saved them as a PDF file on my PC.

Also, you will need a CD with the PET scan, so ask for it when you go. Most places can give it to you that day or send it to you. And when going for a 2nd opinion, that hospital normally wants the original biopsy slides sent to them.