Hi Susan,

I just read this thread to catch myself up...man, you have been busy. The beginning is the hardest part. You are flooded with all this information and jargon that you don't understand and you have to hear it from someone you may not like too much. Finding a good doctor/team of doctors can be a challange!! I started with one doc and had 3 surgeries then switched to my current doc who I like very much. I did go to Sloan for a 3rd opinion and since they said the same thing I stuck with my current doc. I saw Dr. Shah at Sloan..is that who you are seeing? He was a nice man, very smart!!

I understand why your husband doesn't want surgery...it is hard. I hope he makes it to the forums sometime. As I'm sure you already know, the people here are a wonderful help. There is just something about talking to people who know how you feel that makes it all seem easier to handle.

I look forward to hearing how your appointment at Sloan goes, I'm sure you will fill us in:)


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)