I'm really taking the advice to heart. Actually, we are. Dave is not ready to come on here but asks what folks have to say about various things.
PET done. Spoke to Dr Chicken Little armed with questions from here and very firm when he tried three times to give me the bum's rush. (You should have heard me when he asked if he was going to "HAVE" to go over this with Dave as well).Bad enough all this was done over the phone.

He pretty much confirmed the info I mentioned before. SCC,BOT, from MRI and exam has not spread to other areas like tonsils,sinuses,etc but need PET to confirm. Tumor on tongue about 2-2 1/2 . From MRI node involvement only on one side(still a bit skeptical but thinks it didn't cross the mid line).

Oh didn't know how many nodes on right side.When I asked that he said "I don't know. Let's see the report said from 1.8-2.6. I said"so there's multiple" and he hesitated and said "seems it." Is that an unimportant fact???
Oh, he's not a fan of Sloan but tough we are going. I'm not a fan of his...After the PET we should be done with him.

So, I started a folder and notebook. Dave and I divided up tasks that need to get done and are trying to do practical stuff related to this and just go forward with our very wonderful lives...
whoever thought doing the taxes would be a pleasant distraction???