Susan,

Surgery doesn't always mean tongue surgery. My husband went in to the hospital for what he thought was a one hour surgical biopsy of a swollen node. 6 hours of surgery later, he had a neck dissection with 8 nodes removed and was diagnosed with BOT. The surgeons kept taking biopsies until they finally found out where the primary was. Took out nodes until they had 3 clean nodes in the chain. We are a year out (don't ever have surgery on Friday the 13th) and all is good (albeit a slightly new normal!

Dale says that the surgery was the easiest part of his entire treatment.

Hang in there you are doing all of the right things..