Hi Karen, boy can I relate to what you are saying. I'm a caregiver to Steve and he's about 8 weeks out of treatment now. He was one of the fortunate people who bounced back out of his fog 1 week post treatment and for that I am truly grateful. But we did have the moments you mentioned above. Moments where he fought every suggestion I had for him to do things like have a shower, drink fluids etc. It was my daily "hitting my head against a brick wall". For my own sanity I had to back off and let him go. I needed to realise he was an adult and as much as I wanted him to do things I didn't know how badly he felt. So I would suggest things like showers etc, then tell him he was an adult and it was up to him. In the end he would do what was needed. Hang in there. It's a hard job, the hardest I've ever had. But together you will get there. Each day will get a bit easier. We are heading into our 3rd post tx appointment on wednesday and it does get tough just beforehand. A reminder that we still don't know if it's gone. For me the waiting is the one of the toughest parts, emotionally. Don't forget we are all here and we have all felt like you do at some time. And come here to vent when ever you need to. I did and it really helped. Take care of you too, even when it's hard. Sometimes just 10 mins of sitting in the sun with a coffee can do wonders. Keep us posted on how you both are going and don't ever give up.

Wendy x


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.