I just posted an email to his radiation oncologist to request a food pump. We will hope that comes through. It would certainly be a helpful answer. Thanks for this suggestion!
How do you keep it positive for yourself? I am feeling so overwhelmed today, for no particular reason really. Just on the edge of tears. No, I am not able to really take time for myself. Whenever I do, some crisis occurs while I am gone and I feel guilty, so at this point it is just not worth it for me to go do something for myself.
A good cry is probably what I need, but that doesn't do good things for Kevin, so I really only cry in the shower. Then I just feel stupid for crying in the shower. I know it is ok to have a pity party once and a while, but right now that requires energy that I just don't have. I should go to sleep. Thanks for listening.
Karen...caregiver to husband, 49 yr. former smoker quit 6/14/09. DIAGNOSIS: 6/15/09, SCC BOT prim., + R neck lymph nodes--HPV neg/P16 pos PEG IN: 8/13/09, OUT: ? TREATMENT START: 8/18/09 cisplatin x1, then carboplatin/taxol x5 + 35 rad TREATMENT END: 10/7/09 FOLLOWUP: after Thanksgiving 09
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