Karen,

Good points from all. Your insurance company should allow you a visiting nurse and perhaps you can get his MO to prescribe a pump for the feedings. A lot of patients here had less nausea and better tolerance to the supplement when it was pumped in slowly over a long period of time. He can just lie in a lounger or in bed (slightly propped) while the pump feeds him. I am sure that trying to get enough food in him is hard. I was home full time and still had to chart all the Nutren and water to stay ahead of the game. Your docs should understand what the situation is and provide help toward optimal hydration and nutrition. Does either the RO or the MO have a nutritionist on staff?
It is still early in the game. but with the proper food and water, Kevin will probably see improvement slowly over the next few weeks.

Deb