Senior Member (100+ posts) Joined: Oct 2007 Posts: 104 | Hi Karen This is very definitely a tough part of the journey. Somehow our minds think we are through the hard part once treatment is completed and expects to feel continual improvement. It is difficult to realize it is just not happening that quickly and in fact hubby may feel worse than when in treatment. On top of that the care team is not in the picture on a daily basis and you, the caregiver, are the only one pushing him to do what he knows needs to be done but does not feel like doing. Those excercises and swallowing are very important to his progress and will decrease long term side effects of treatment. You can only keep persisting even though he will not be happy about it and it is very hard on you. Come here and vent your frustration to those of us who understand as often as you need to. Hubby is very fortunate to have you by his side and caring enough to push him.
Caregiver to husband Dx. Stage 4 SCC of gingiva with 3 nodes pos. Partial mandiblectomy with bone graft from iliac crest Dec. 2006. IMRT x30, Cisplatin x3. Completed Tx. March 15, 2007. Osteonecrosis & removal of graft & plate Oct. 2007. Recurrence of SCC Dec. 2007. Deceased Jan. 17, 2008.
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